Illinois is set to boost care for individuals with Sickle Cell Disease as it joins a federal program focused on gene therapy access. The state will receive nearly $9.55 million in federal funding over the next decade. This initiative aims to enhance screenings, referrals, and comprehensive support services for patients. Health officials expect the program to break down barriers for those seeking advanced treatment options, especially in underserved communities. Advocates say the funding marks a significant step toward bridging healthcare gaps, potentially improving quality of life and long-term outcomes for hundreds of Illinois residents affected by the genetic disorder. Additional information about the CGT Access Model can be found on the federal Centers for Medicare & Medicaid Services website.
“In Illinois, we’re focused on supporting access to healthcare for the people of our state,” said Governor JB Pritzker. “As Illinois continues its efforts to make healthcare systems more equitable and affordable through state initiatives, our participation in this model will further support that mission. With access to more services and cutting-edge gene therapy treatments, people living with Sickle Cell Disease in Illinois will have better access to potentially life-changing care.”
“Participation in the federal CGT Access Model will be a key part of ensuring Illinois Medicaid customers can access these groundbreaking treatments,” said HFS Director Elizabeth M. Whitehorn. “We are proud to have also received a grant award to be able to better serve our customers who are eligible for these transformative treatments by supporting them through this journey.”
“At the Sickle Cell Disease Association of Illinois (SCDAI), we believe that every advancement in care must be met with equal dedication to equity, access, and community support,” said Sickle Cell Disease Association of Illinois Executive Director TaLana Hughes. “This groundbreaking model is more than just a pathway to gene therapy—it’s a promise to uplift individuals and families living with sickle cell disease by removing barriers and surrounding them with the wraparound services they deserve. SCDAI is honored to stand at the heart of this effort, ensuring that hope, healing, and opportunity reach every corner of our community. Together, we are not only changing treatments—we are changing lives.”
